UPDATED 9/13/2013

If you have other questions that are not addressed below feel free to leave them in the comments section below. The FAQ fairy will answer them as soon as possible.

Q: What is Emily and Miles’ address?
A: 5715 Oakdale Ave, Woodland Hills, CA 91367

Q: Has Emily lost her hair?
A: Emily has kept her hair thus far.  Her hair is suuuuuuuper thick to begin with and she has A LOT of it.  It has thinned a tiny bit, but overall she’s still got those luscious locks.  Emily’s doctor indicated that the cocktail of chemotherapy drugs that she is on should cause it to thin, but not fall out completely.  As she undergoes more sessions the effects may build up, but for now she looks pretty much the same (aka beautiful).

Q: How was the cancer discovered?
A: Emily visited the doctor for a lingering cough a few months ago. She was treated for bronchitis and eventually diagnosed with asthma. The pain in her lungs, however, persisted. After several months of various treatments, an x-ray revealed that Emily had a rapidly-growing tumor in the right side of her lung.

Q: What type of cancer does Emily have?
A: City of Hope has performed a number of invasive tests and biopsies which revealed that she has Stage 4 Adenocarcinoma — the most common type of lung cancer found in young, non-smoking females like Emily.  The cancer has also spread from the tumor to the lining of the lung.

Q: What type of treatment does Emily have to go through?
A: Emily will be receiving intensive chemotherapy to treat the cancer. Right now it does not look like surgical intervention is possible due to the condition of the tumor in her lung, however, her doctors are committed to pursuing the most aggressive treatments available.

Emily is also undergoing fertility treatments in advance of any therapies for the cancer. Emily and Miles have always wanted children and due to the potential that treatment could harm Emily’s eggs, she has already begun treatment. This is being done through USC Fertility which has a department that specifically treats cancer patients. The idea that they’ll have ‘babies’ waiting for them when this is all over has given Emily enormous hope and something extra to fight for.

Q: How can I get updates on Emily’s condition?
A: You can subscribe to this blog to receive updates via email by following these easy steps.

Q: Who is taking care of Emily?
A: Miles, husband extraordinaire. Oh and a bunch of incredible physicians and family members.  Check out Emily’s Care Team.

Q: How did Ginny (Miles and Emily’s dog) get to be so awesome?
A: According to Michele Taylor, Ginny has so much of Miles’ and Emily’s personality that she “might have actually sprung from their loins.” We all know how awesome Emily and Miles are, both together and as individuals, Michele’s logic seems completely logical, almost…


10 thoughts on “FAQs

  1. I’m so happy to read this blog and see your beautiful girls! I am wondering what kind of NSCLC you have. I am guessing EGFR based on your our age and gender? Do you know the specific gene? My husband was diagnosed with HER2 recently.

  2. I’m 30 and was just diagnosed with stage 4 NSCLC that spread to the lining, never a smoker, very healthy and just had a baby four months ago. I am so determined to live, but I don’t feel like I’m being given a chance to really fight because I have been told that surgery isn’t an option. I did test positive for the ALK gene, so I am currently testing the chemo pill to see if it works, but like you, I really really want to get this cancer cut out of my body! I am very interested to talk to you and get some hope!

    • Optimal Research has a NSCLC ALK+ trial that can be initiated by your physician on demand. Feel free to reach out to me (Holly in patient recruitment) at 240-238-4957.

  3. Emily: Can I make one suggestion? You were asking for people under 40 who have lung cancer to contact you. My sister passed away last October 15 (2014) and she was only 51. She never smoked, worked out, and at healthy. Maybe it’s a “medical” thing that ‘young’ is classified as under 40, but I know several people who are above 40 and in their early 50s with non-smoking lung cancer (I’m starting to think it’s something specific in our area causing this, as the specialists in Cleveland did state that my sister’s was most likely environmental causes). She had a very, very rare cancer – they called her a striped zebra, as it was a carcinoma AND a sarcoma – she didn’t have a chance, but she did continue experimental treatment, which included having genetic testing, and we did discover the genes she had – and there was a chemo pill she tested. It did not work for her, but it does seem to be working for a friend (how weird is that to KNOW someone using the drug your sister tested – and sad, too). I am so happy for your NED status, and which you all the best and continued health!

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