Come celebrate – 4 YEARS NED!

“Hey Emily, there’s a guy here who says he knows you. His name is Ned? He says he wants to say hi, and that Miles would be totally cool with it?”

This is how my amazing Nurse Practitioner, Carrie Christiansen, broke the news that my latest scans show that I am officially 4 YEARS NED (No Evidence of Disease)!

Four years ago today, Dr. Flores performed the surgery that removed all visible cancer from my body. I just read the blog post from that day, and the comments of love and support from those of you around the country (and world!) brought tears to my eyes. I cannot express how overwhelmingly grateful I am to all of you, and to be in the position I am in today.

All patients deserve this feeling. All patients deserve to survive.

Bonnie and Emily

Meeting Bonnie Addario at my first ALCF 5k in 2012 changed my life.

That’s why this Sunday, February 12th, I’ll be celebrating 4 years NED at the Addario Lung Cancer Foundation’s 5k event in San Dimas, CA.  Come out to celebrate with me, and at the same time help raise funds so that more patients can find their NED.

Miles, Hope, Maggie and I will be in San Dimas at 9:30AM for registration, and the 5k starts at 10:30AM. Please come celebrate with us…If you can’t make it in person, consider making a donation (below) to further the ALCF’s amazing work for lung cancer patients.

Click HERE to register, then join my team, TEAM EMBEN & RICK (in honor of my recently lost dear friend, Rick Moeller).

Click HERE to donate to the cause of fighting lung cancer and supporting patients like me.

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These little munchkins are ready to walk – err, “stroller” – on Sunday!

Hope to see you all there. Much love. Live in the moment.

EmBen

I’m in PEOPLE Magazine, and the Rose Bowl Parade!

Wow – what an incredible thing to wake up to – we’re in PEOPLE Magazine!

Thank you to PEOPLE and to their reporter, Tiare Dunlap, for publishing such an extensive piece about our story. This will hopefully do much to raise awareness about lung cancer.  Please share to help us spread the word and to encourage follow-up stories!

CLICK HERE for full article and videos

ALSO – watch me tomorrow in the ROSE PARADE!  I’m incredibly honored to be riding City of Hope’s float.  I used to watch the Rose Parade every year with my family, and I cannot wait to fulfill this childhood dream!

people

Spreading the word – Puerto Rico welcomes us!

This past weekend, as a spokesperson for the Addario Lung Cancer Foundation (ALCF), Miles and I traveled to Puerto Rico, where I spoke before the 5TH Annual Puerto Rico Fall Cancer Symposium.

Puerto Rico presentation

Dr. Edgardo Santos, from ALCF Center of Excellence Boca Raton Regional Hospital, moderated the Q&A following my speech.

I was standing in for my fellow stage IV young-lung friend, Sandy Jauregui Baza. Sandy, fluent in Spanish, was scheduled to speak but had to bow out as the potential for blood clots from air travel is exacerbated by her cancer drugs. I did my best to make her proud, intertwining English with a little Spanish as I shared my story in an attempt to educate general oncologists and docs to look beyond age, gender and smoking history when treating their patients. Lung Cancer is the number one cancer killer of both men and women of all ages. All physicians need to be alert to its symptoms, aggressive in ordering both tests and referrals, and advise their young patients on fertility preservation.

I’m so grateful my message and speech were well received, and there was a lively Q&A afterward. I met some wonderful doctors, researchers and nurses, and hopefully changed their perspective on who can get lung cancer. And then we got to enjoy this….

Puerto Rico beach

 

Thank you, Oprah!

Many thanks to Oprah and the O Magazine staff for helping raise awareness of the growing prevalence of lung cancer among young never-smokers like myself, both through their informative article in last month’s issue and my follow-up letter in their November 2015 publication.

See a copy of my letter below. Thanks, Oprah!Oprah Combined

 

 

 

 

 

 

 

 

 

 

Breath of Life

At age 28, I was diagnosed with stage IV lung cancer. I was a former college athlete and had never smoked. Three years later – after chemotherapy, surgery to remove my entire right lung, and months of debilitating radiation – I am working as a spokesperson and patient advocate for the Bonnie J. Addario Lung Cancer Foundation (ALCF) and participating in the Genomics of Young Lung Cancer study, mentioned in Aimee Swartz’s article “The (Non-) Smoker’s Disease.”

Because of this study, and the amazing care I received through the ALCF, I am starting to think about life after cancer (including the possibility of a baby!). Thank you so much for bringing this story to the attention of your readers. There are thousands of young, healthy, athletic women like myself out there facing a diagnosis like mine. They so desperately need to know that this isn’t their fault, and they aren’t alone.

Emily Bennett Taylor